A wife and mom trying to figure out who she is again...
A little over a year ago we had some friends over for dinner. We were sitting around the table while the kids were all playing. As most discussions go, we were talking about daily life, our own little quirks, and idiosyncrasies. Our friend looked right at me and asked me point blank why was I …
It’s been quite a while since I last posted anything. Life has been moving along quite nicely. I don’t know if everyone feels this way, but for us I feel like it’s always two steps forward and one step back. Life is returning to normal. My leave of absence is over at work, I was …
November is Epilepsy Awareness Month. This is an illness that we have been dealing with for over nine years now. I will usually post something on Instagram and Facebook about it. I post a few informational pictures along with pictures of Reagan through the years having EEGs done. For me, it tends to be a …
October 2011, I insisted that Reagan’s medication needed to change. Keppra was increasing her seizures. October 2012, we were celebrating Reagan being seizure free for ONE YEAR! It felt amazing! We had reached a milestone! I remember taking Reagan on a mommy daughter date that day. We went and had a smoothie and blueberry bagel. …
These last six months have been a struggle! There is no alone time for parents anymore. Kids haven’t been going to school, no play dates, no sleepovers. 24/7 of being at home. We made it through then end of the last school year doing what we could to finish school and navigate life. We enjoyed …
I have been doing research on Epilepsy and the changes that can occur during puberty. Reagan is only nine, but I know that puberty will be hitting us soon. For some girls, hormone changes mean nothing for epilepsy, for others it could mean several things. Seizures could just go away, or they could become more …
I don’t know about you, but I had visions of what being a mom would look like. What it would be like. You see on movies and TV that during the newborn stage, mom is exhausted, looks like she hasn’t slept in months, who knows when the last time she showered was? Life was very …
So, we just found out that our daughter needs to put on weight, and fast. We also just found out that she has Bilateral Congenital Cataracts (BCC)… What would you do? We both went home in shock and we cried. Then we called our moms and cried to them. We asked our mother’s what we …
Life of a “special needs” child is full of doctor’s appointments; check lists, and a big medical binder! We had gotten through eye surgery to remove Reagan’s cataracts. A month later, she had an eye exam under anesthesia, and by the time she was 7.5 weeks old, Reagan got her first pair of glasses. Now, …
I was ecstatic when I found out I was having a little girl! I imagined dressing her up in cute outfits with matching bows to go with. Then I began to imagine what she would be like, what her personality would be as she got older. I began to see her whole life (in a …